Here you will find links to resources that are helpful for caregivers, including tips, information and website links. I hope you will find this section useful, and I invite you to share on my blog any resources that you have discovered. I can add them to our list. Thank you.
AARP provides much useful information through the AARP Bulletin. The November 2015 edition has a special report on Caregiving in America. Your local library may have a copy. AARP membership is $16/year and includes both the Bulletin and AARP The Magazine. You can join online. A search for “caregiving” at www.aarp.org will display many links to helpful caregiving topics.
New California Law
When patients are discharged from a hospital they have the right to designate a caregiver. The hospital must indicate who the caregiver is on the patient’s medical chart. Hospitals must notify the caregiver of the patient’s discharge plan and the patient’s rehab continuing care needs and provide training as necessary. More information can be found at http://states.aarp.org/ca-new-law-helps-family-caregivers/
National Alliance for Caregiving
“Established in 1996, the National Alliance for Caregiving is a non-profit coalition of national organizations focusing on advancing family caregiving through research, innovation, and advocacy. The Alliance conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues.”
Family Caregiver Alliance
“Family Caregiver Alliance is first and foremost a public voice for caregivers. Founded in the late 1970s, we were the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care for loved ones at home. We illuminate the caregivers’ daily challenges to better the lives of caregivers nationally, provide them the assistance they need and deserve, and champion their cause through education, services, research an advocacy.”
Caregiver Action Network
“CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.”
Search for “caregiving” at the Medicare website for caregiver resources.
Disease Specific Websites
There are one or more websites for every disease that provide information helpful for caregivers. Just enter the disease name into the search box to find them.
National Multiple Sclerosis Society http://www.nationalmssociety.org
American Cancer Society http://www.cancer.org
Muscular Dystrophy Association http://www.mda.org